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ReferencesBarlow J, Harrison K, Shaw K L (1998) The experience of parenting in the context of Juvenile Idiopathic Arthritis. Clinical Child Psychology and Psychiatry, 3(3), 445-63 Beales JG, Keen JH & Holt PJL (1983) The child’s experience of the disease and the experience of pain in Juvenile Idiopathic Arthritis. Journal of Rheumatology, 10(1), 61-65 Beresford B (1995), Expert opinions: a national survey of parents caring for a severely disabled child. Bristol: The Policy Press (The Joseph Rowntree Foundation) Britton CA (1999) A pilot study exploring families’ experience of caring for children with chronic arthritis: Views from the Inside. British Journal of Occupational Therapy, 62(12), 534-42 Britton CA (2001) Families’ experience of the management of juvenile arthritis in the home. Unpublished PhD. University of Brighton Britton Ca (2001) Telling it how it is – researching the family’s perspective: what is it really like for families managing their child’s serious condition at home. The Handsel Trust: Birmingham ISBN 1 903745 03 9 Britton CA & Moore A (2002a) Views from the Inside, part 1: routes to diagnosis – families’ experience of living with a child with arthritis. British Journal of Occupational Therapy, 65(8), 374-80 Britton CA & Moore A (2002b) Views from the Inside, part II What children with arthritis said: and the experiences of siblings, mothers, fathers, and grandparents. British Journal of Occupational Therapy, 65(9), 413-419 Britton CA & Moore A (2002c) Views from the Inside, part III: How and why families undertake prescribed exercise and splinting programmes and a new model of the families’ experiences of living with juvenile arthritis. British Journal of Occupational Therapy, 65(10), 453-460 Britton CA (2003) Kids with arthritis - a guide for families. First Edition. Brighton : Kids with Arthritis: Brighton ISBN 0 9544283 0 7 Burrows F & Berde C (1993) Optional pain in infants and children. British Medical Journal, vol.307, 815-816. Contact a Family Factsheet: Grandparents (last updated July 2003). www.cafamily.org.uk/ Copeman WSC (1967) Arthritis and rheumatism. London: Evans Corbin J & Strauss A (1988) Unending work and care: managing chronic illness at home. San Francisco: Joffey-Bass Daltroy LH (1993) Doctor-patient communication in rheumatological disorders. Bailliere’s Clinical Rheumatology, 7(2), 221-39 Davis H (1993) Counselling parents of children with chronic illness or disability. Leicester: British Psychological Society Department of Health (2004) Building a safer NHS for patients –improving medication safety. Report by the Chief Pharmaceutical Officer Dobson B & Middleton S (1998) Paying to care: the cost of childhood disability. York, Publishing Services Eiser C (1993) Growing up with a chronic disease: the impact on children and their families. London: Jessica Kingsley Gibson P & Llewellyn (1997) Learning about paediatric pain. Paediatric Nursing, 9(10) 20-23 Johnston C and Marder L (1994) Parenting the child with a chronic condition: an emotional experience. Pediatric Nursing, 20(66), 611-14 Joseph Rowtree Foundation (1999) Hurting into a void: transition to adulthood for young people with complex health and support needs, report by Jenny Morris. London: Published for the Foundation by Pavilion Knafl KA & Deatrick JA (1986) How families manage chronic conditions: an analysis of the concept of normalisation. Research in Nursing and Health, 9, 215-22 Knafl KA, Zoeller LH, Ayres L, Breitmayer BJ, Gallo AM (1995) Learning from stories: parents’ accounts of the pathways to diagnosis. Pediatric Nursing, 21(5), 411-15 Leff PT & Walizer EH (1992) Building the healing partnership: parents, professionals, and children with chronic illnesses and disabilities. Cambridge MA: Brookline Books May J (1992) Rebalancing the mobile: the impact of chronic illness / disability on the family. Journal of Rheumatology, 19, 2-5 May J (1996) Fathers: the forgotten parent. Pediatric Nursing (USA), 22, 243-246 Page G (1991) Chronic painand the child with juvenile rheumatoid arthritis. Journal of Pediatric Health Care, 5(1), 11-16 Payne J (2000) Prevention, not management: the way forward. Occupational Therapy News, 1(5) Petty R (1993) Children and young adults. In Maddison P and others (Eds.) Oxford textbook of rheumatology, vol. 1. Oxford: O.U.P. Rapoff M (1982) Compliance of pediatric patients with medical regimens: a review and evaluation. In Stuart R (Ed), Adherence, generalisation, and compliance in behavioural medicine. New York, Bruner/Mazel, pages 79-124 Schaller JG (1989) [Chapter 58] In McCarthy (Ed.) Treatment of rheumatoid arthritis and allied conditions. 11th ed. Lea and Febiger Timko C and others (1992) Parental risk and resistance factors among children with juvenile rheumatic diseases: a four year prospective study. Journal of Behavioural Medicine, 16 (6), 571-588 West S (2000) Just a shadow? A review of support for the fathers of children with disabilities. Birmingham: The Handsell Trust |
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