One parent’s advice was 'at first we could not understand why it took so long to make a diagnosis. We now understand that it is important to ask the questions we want answered and not just accept what the doctors say'.

• Healthcare professionals can make a huge difference to daily life and it is really worth being persistent in getting a full assessment carried out.
• Always write down the name of any therapist you visit or telephone. Be clear about for which department they work. This information is important because: staff change and you may need to arrange follow-up action, therapy or help.
• Write down your questions before you leave home.
• Take someone with you to appointments – it’s very difficult minding your child, remembering your questions and listening to the answers all at the same time.
• Don’t be afraid to ask questions – and ask again if you are still unclear.
• Ask each consultant or therapist to send you a copy of their report or clinic letter. They have to send a copy to your G.P. after each of your child’s appointments. Keeping each copy of these letters will prove very helpful when you discuss child’s condition or needs with other professionals. (For example, it provides evidence that your child has recognised problems with their knees so that the staff can accommodate this at school.)
• If you have particular preferences or fears about specific treatments or drugs, you must say so. The professional cannot guess what is worrying you, and will usually negotiate treatment options where possible.

...and finally

• Make sure you have dinner planned before you leave home because most parents find attending appointments absolutely exhausting!

If you need to find a G.P., contact the local health authority or look at the ‘local doctor book’ at the local library and Citizens Advice Bureau. Check that the new doctor has space for new patients and can accept new patients from your area. Fill in a transfer form available from the new doctor’s surgery. If you need to change doctor, you do not have to ask permission from your existing doctor. Before you make the change, carefully check out availability about different surgeries (such as blood tests, pharmacy, health visitors, women doctors).